Saturday, September 9, 2017

Ellis Health Update - 170909


My operation was performed on 21 August 2017. When I awakened after the operation, the doctor informed me that he was able to remove “all of the cancer visible to the naked eye without removing the lung.” The actual surgery was followed by a heated chemotherapy treatment. When I first became aware enough of my surroundings to remember anything, a nurse was explaining that the breathing tube in my throat would likely be removed the next day. The tube of course made talking impossible. But then I don't remember having anything to say. Likewise, it was not possible to swallow anything; however, I was being fed intravenously so didn't need to swallow.

The nurses and doctors in the Intensive Care Unit were without exception terrific in their attention to patient welfare. Considering that Hurricane Harvey chose my period of residency in ICU to wreak its wrath on Houston and that the staff that could even get to the hospital were working on a near around-the-clock basis with only infrequent sleep breaks, I was amazed at the never-failing friendly, courteous care they provided. For instance, I noted that my night nurse often used a flashlight at night when she needed to check a machine. She thus avoided turning on those blinding overhead lights seeming designed to wake the dead.

My night-shift nurse in ICU for all but one night of my stay was a friendly, efficient bundle of energy named Rina. She came on shift one night with the breezy announcement that we were taking a trip through time and space for tests the doctor had ordered. She then, in a reverse Cinderella's coach move, declared my hospital bed to be a spaceship, appointed herself Captain, recruited two additional staff members (I think they were called called Oz and Laughing Man) as crew, hung all of the assorted machines and devices I was hooked up to on an instrument tree and and/or my bed itself and guided us out of the room and into the passageway. There she entered zoom mode (spaceship lingo for warp speed I assume) by uttering the command “Enter Zoom.” The ships computer then acknowledged her command by saying “Entering Zoom Mode” and we were off down the passageway to the elevators. (Note. I was never sure whether the spaceship's tinny sounding command response was coming from a speaker or a crewmember.)

Traveling at warp speed, we arrived at the elevators in short order, shifted out of zoom mode for the elevator ride and then back into zoom for another short trip to the back entrance to the Emergency Room where a technician was waiting to perform a PET scan. Somehow the crew managed to transfer me along with all of my attached tubing and sensors to the movable bed of the PET machine. After the scan was completed, I was moved, along with all of my attached paraphernalia, was moved back to the “spaceship” and we returned to the ICU Unit.

I really do not remember for sure just when I was moved from the Intensive Care Unit. By then Julia had returned home to resume her duties as a teacher at Diamond High School in Diamond, MO. Diana had managed to take a few more days off work in order to stay with her mother until I was out of the hospital. Julia and husband Rick Allison who had driven from their home in Joplin, MO managed to get back home before the hurricane struck. Diana and Rosemary hunkered down at the hotel to wait Hurricane Harvey out. I was safely ensconced at the hospital and they were snug enough at the Staybridge Hotel. Although hospital visitation was impossible we could console ourselves with the knowledge that we were all safe and comfortable in our isolated domiciles.

I spent a very short time in the Intermediate Care Unit before having the last of my four chest drain tubes removed and being cleared for release on 30 August. The photograph shown here (right), although it may look like the first awakening of Frankenstein's Monster, actually shows me on the day I left the hospital.

However, I had steadfastly answered the social worker's questions as to what equipment we had at home based on what was located at our home in Cottonwood, never considering the fact that I would need to remain in Houston for an extended time for post surgical care. As a result, procuring a walker, something absolutely essential before being released from the hospital, turned out to be a mad scramble. With the help of the social worker we finally located one with a seat in case I suddenly needed to sit down and easily-applied brakes to hold the unit in place while I did so.

The supplier would deliver the walker that day but could not provide a specific delivery time. We finally decided to change the delivery location from the hospital to our hotel, take a hospital wheelchair to the shuttle van and use a hotel wheelchair from the van to our room. As luck would have it we met the walker delivery man just as I was wheeled out of my room, so we took delivery and Rosemary rolled the walker along with us.

I had a lot of pain and trouble sleeping for a few days after leaving thr hospital. We returned on Tuesday, 5 September for a follow-up office visit and a couple of tests. The doctor adjusted my medications, doubling my bedtime dosage of tramadol (two pills instead of one), doubled the amount of Tylenol I was taking, added Advil and adjusted my schedule to make sure I was taking something for pain once every three hours. Hr also had us buy a pain patch to apply to my back. Rosemary then took charge of all my medications, a chore that had proved too much for me. The next few days went much better: the change in medications took care of the pain and I slept much better, getting my normal nine hours on 7 September.

Other than having frequent fainting spells (thank goodness for the seat in my walker), I was normal but feeble by 7 September and we went to the Olive Garden for dinner.

My next followup visit is scheduled for 12 September and I hope to get a better feel for when we can leave Houston then.


1 comment:

  1. Hi Ellis--somehow the word "adventure" seems flip, but it honestly does come to mind when I read your (wonderfully written) account. I'm not an anxious person by nature, but I was well and truly worried throughout the entire experience. I still can't believe that the Staybridge never lost power. I tried to send a care package and the post office said they weren't delivering mail to that zip code. Every time Diana called, I breathed a sigh of relief.

    I was so happy to hear about the surgery's outcome. I know that you were all aware of the grimmer possibilities going into it. When Diana told me how it had gone, I was relieved beyond the telling. She also told me of your battle with pain following discharge; I'm glad the meds have been upped accordingly. I've certainly never faced the kind of invasive procedure that you just had, but after every knee and heel surgery, I was always told: "Stay ahead of the pain." So my unprofessional opinion is that your new mantra should be, "Better living through pharmacology."

    It's gotta be tough to be away from your home for so long. I'm glad you have such excellent care--the hospital staff sounds incredible--but I know you'd rather be convalescing in Cottonwood. You and Rosemary are remarkable by virtue of your perseverance, resilience, and commitment.

    Sending much love,
    Mary

    ReplyDelete